DeafBlind, but Definitely Not Disconnected

Here’s what Jen­ny­Lynn Diet­rich would like you to know about her:

She’s tak­en ser­vice learn­ing trips to Guatemala and Ghana. She’s a choco­late snob who wouldn’t dare touch the gener­ic stuff. She’s engaged to be mar­ried next year. She loves to paint, draw, and per­form on the the­ater stage. And she’s pas­sion­ate about help­ing oth­ers, point­ing them toward the resources that could help them change their lives.

You might learn these things if you just ask her. But Diet­rich says peo­ple are often too afraid or intim­i­dat­ed by two of her more obvi­ous traits: she is deaf and blind.

One of the main points Diet­rich hopes to make in her TEDxSalem talk, enti­tled “Deaf­Blind: Blind but Not Blind,” is that peo­ple with dis­abil­i­ties val­ue auton­o­my — they want to be seen as reg­u­lar pro­duc­tive mem­bers of soci­ety, just like those with­out dis­abil­i­ties.

“We don’t want people’s pity,” she says. “We just want to be accept­ed as equals.”

Born with a rare hered­i­tary con­di­tion called Stick­ler syn­drome, Diet­rich is ful­ly blind in her left eye and has lim­it­ed vision in her right. She’s also pro­found­ly deaf in her left ear, but she can hear a bit in her right with a hear­ing aid. Her pre­ferred method to com­mu­ni­cate is Amer­i­can Sign Lan­guage. She also uses a form of com­mu­ni­ca­tion called Pro­Tac­tile — devel­oped by the Deaf­Blind com­mu­ni­ty — that involves sign­ing on someone’s hand or using parts of their body to help give visu­al or emo­tion­al cues.

Dur­ing her ear­ly years grow­ing up in Okla­homa, Diet­rich attend­ed a main­stream school. It wasn’t until high school that she went to a state school for the deaf. She went on to earn a bachelor’s degree in Com­mu­ni­ca­tion Stud­ies from Gal­laudet Uni­ver­si­ty in Wash­ing­ton, D.C.

Ulti­mate­ly she moved to Seat­tle to work as a Case Man­ag­er at the Deaf­Blind Ser­vice Cen­ter. She helped oth­er Deaf­Blind peo­ple by pro­vid­ing ser­vices to make their lives eas­i­er — includ­ing advo­ca­cy, infor­ma­tion and refer­rals, edu­ca­tion, and out­reach — and she ulti­mate­ly dis­cov­ered she had a pas­sion for help­ing oth­ers.

One of the most use­ful resources Diet­rich found in Seat­tle was Sup­port Ser­vice Providers (SSPs) — sight­ed guides who pro­vide Deaf­Blind peo­ple with visu­al infor­ma­tion about their envi­ron­ment so that they can par­tic­i­pate in reg­u­lar main­stream activ­i­ties such as gro­cery shop­ping, read­ing mail, or bank­ing.

“When I moved to Ore­gon, it was a chal­lenge because there’s not an SSP pro­gram here for peo­ple like me to access,” she says. “I’ve been work­ing hard this year to get some­thing like that estab­lished here by reach­ing out to oth­er Deaf­Blind peo­ple in the com­mu­ni­ty and lead­ers in pub­lic ser­vice.”

Diet­rich came to the Willamette Val­ley to pur­sue grad­u­ate stud­ies at West­ern Ore­gon Uni­ver­si­ty. She is no longer a stu­dent there, but she is focus­ing her time on attempt­ing to devel­op sup­ports for Deaf­Blind peo­ple in the state. She is cur­rent­ly a facil­i­ta­tor for a non­prof­it called the Ore­gon Deaf­Blind Com­mu­ni­ty Alliance Net­work, some­thing she hopes will become a larg­er statewide orga­ni­za­tion to help pro­vide resources to those who need it.

Advo­ca­cy would be a crit­i­cal part of their work — to help the gen­er­al pub­lic look beyond their dis­abil­i­ties and learn about their inter­ests, their per­son­al­i­ties, and their goals.

“Instead of watch­ing us in fear from afar,” she says, “be brave, and come and learn from us by engag­ing with us!”

TEDxSalem VI

TEDxSalem VI is an all-day event fea­tur­ing talks, per­for­mances, refresh­ments, lunch and a swag bag. It runs 9 a.m. to 4:30 p.m. Sat­ur­day, Jan. 5 at the Salem Con­ven­tion Cen­ter. Tick­ets are on sale now for $55, $45 for stu­dents. Fol­low us on Face­book for the most up-to-date news from our com­mu­ni­ty, and check our web­site reg­u­lar­ly for new infor­ma­tion. You can also reach us at info@tedxsalem.com.