Melissa Pollman: Rare disease awareness

Entre­pre­neur. Par­ent. Activist. Meet Melis­sa Poll­man. Co-own­er of ConKraft Con­struc­tion, Cen­tral Homes Prop­er­ty man­age­ment and Stor­age 4 Less, she’s mar­ried (to Dean) with four kids (Audrey, Madi­son, Cole and Haley), plus two dogs, a cat, two Pygmy goats and a bunch of fish. She earned her MBA from Willamette Uni­ver­si­ty’s Atkin­son Grad­u­ate School of Man­age­ment while work­ing full time and rais­ing a fam­i­ly. She loves boat­ing in the sum­mer and ski­ing in the win­ter, and most of all, spend­ing time with her fam­i­ly. She is a founder of Haley’s Heroes, a foun­da­tion rais­ing funds and aware­ness to help find a cure for Bat­ten Dis­ease.

What was your first TED expe­ri­ence? About 18 months ago I was invit­ed to watch my neigh­bor, Becky McBride, give a TEDx [like] talk as part of her nurs­ing degree. She spoke on pedi­atric pal­lia­tive care and was inspired to do so by our sto­ry of Haley and Haley’s Heroes Foun­da­tion.

What inspired you to do a TED talk? When faced with immea­sur­able grief you will do any­thing! I would nev­er have thought to do a TED talk before Haley’s diag­no­sis but now I will speak any­where and every­where peo­ple will lis­ten to spread aware­ness. It may not save Haley but at least it’s some­thing I can do when I’m pow­er­less to cure my daugh­ter. Fears of pub­lic speak­ing and being uncom­fort­able are noth­ing com­pared to the fear of los­ing a child. If my words can help one per­son, if I can add hope to a life, then maybe this jour­ney we are on won’t be for noth­ing. Haley will be a lega­cy and sto­ry that lives on and cre­ates hope in hope­less sit­u­a­tions.

What does this year’s theme “Vision” mean to you? One of the symp­toms of Bat­ten Dis­ease is loss of vision. Haley’s loss of vision put us on this jour­ney. Her joy for life and spir­it inspired us to cre­ate a plan or vision to save her. The phrase “how to have vision when you can’t see” comes to mind. 

What do you feel most grate­ful for in your life?  My fam­i­ly.  I’m blessed to have a hus­band that is also my best friend. My chil­dren are extreme­ly close despite the age dif­fer­ences. We are a close-knit fam­i­ly. My heart is full when we are all togeth­er.

How has your life been dif­fer­ent than what you’d imag­ined? I envi­sioned a fam­i­ly and all that goes along with it… watch­ing your kids grow up… watch­ing them get mar­ried… becom­ing a grandparent…etc. Receiv­ing the diag­no­sis that Haley has a fatal dis­ease blew that pic­ture up. I live with con­stant grief while bat­tling to stay present and grate­ful for the time we have. 

What is the scari­est thing you have ever done for fun? As a teen after I jumped off a bridge into a riv­er up at north fork. It was real­ly high up and I land­ed wrong. I had bruis­es all up and down the back of my legs. It was first and last time I ever did some­thing like that.

Do you have any com­mu­ni­ty activ­i­ties? I like to run races with friends. I have run Hood to Coast for the past five years and actu­al­ly find it fun! 

If you could instant­ly become an expert in some­thing, what would it be? Expert in cur­ing Bat­ten Dis­ease!

Favorite book? I love to read mur­der mys­ter­ies- par­tic­u­lar­ly with a hero­ine! I real­ly don’t know why but it’s all I read … except for the TED book.

Ran­dom fact: I am left-hand­ed but my kids are all right-hand­ed.

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TEDxSalem VII

TEDxSalem VII is an all-day event fea­tur­ing talks, per­for­mances, refresh­ments, lunch and swag. It takes place from 9 a.m. to 4:30 p.m. Sat­ur­day, Jan. 4, 2020, at the Salem Con­ven­tion Cen­ter. Click here for tick­ets.  Fol­low us on Face­book for the most up-to-date news from our com­mu­ni­ty, and check our web­site reg­u­lar­ly for new infor­ma­tion. You can also reach us at info@tedxsalem.com